An unforgettable award from Anna Falanga & Alok Khorana

An unforgettable award from Anna Falanga & Alok Khorana

Our SERENITY Consortium is proud of Elin Baddeley’s achievement at 13th ICTHIC – International Conference on Thrombosis and Hemostasis Issues in Cancer in Bergamo!

CoClarity trial

CoClarity trial

We are proud to share an update on SERENITY. As part of this project, the CoClarity trial is evaluating the appropriate use of antithrombotic therapy near the end of life.

The CoClarity trial explores how a Shared Decision Support Tool can help patients and clinicians make better informed decisions together.

The study is currently running in the Netherlands, Spain, Poland, and the United Kingdom. First patient inclusions have started and the collaboration continues to grow.

This marks an important step toward more person centered and appropriate care.

Special webinar on the SERENITY Study

Special webinar on the SERENITY Study

We are excited to invite you to a special webinar on the SERENITY Study and its potential to change clinical practice in cardio-oncology.

We would like you to join us on 9 April at 14.00 GMT (15.00 CET) for this Webinar.

In this webinar, the following guest speakers from our consortium will present:

  • Dr Michelle Edwards – Cardiff University, UK
  • Dr Anette Arbjerg Højen – Danish Center for Health Services Research, Denmark
  • Dr Stella Trompet – Leiden University Medical Center, The Netherlands

*Seminar Alert!* Registration is now open for our February Seminar!

*Seminar Alert!* Registration is now open for our February Seminar!

Topic: “SERENITY: developing an evidence-based decision support tool to support shared decisions about continuing or discontinuing antithrombotic medication for people with cancer towards the end-of-life” Presented by Dr. Michelle Edwards & Dr. Kathy Seddon

When: Friday 27th February 2026 [UTC 1:30 PM | CET 2:30 PM | BST 1:30 PM | EST 8:30 AM | CST 7:30 AM] Check your local time

Cost: Free

Register here

*A recording of the seminar will be made available exclusively to ISDMS members on the Society’s website approx. 1 week after the session.

Serenity joins the Quality of Life and Patient-Centred Care (QoL-PCC) cluster

Serenity joins the Quality of Life and Patient-Centred Care (QoL-PCC) cluster

The cluster represents a key opportunity to advance oncology care. One of the main goals is to develop a unified vision around these concepts while establishing core axes related to Patient and Public Involvement (PPI) and stakeholder engagement.

Promoted by the European Commission and led by EUonQol, the cluster brings together projects such as PREFERABLE-II, EU Navigate, MyPath_EU, Pal-Cycles, INSPIRE Palliative Rehabilitation Project, RELEVIUM Project and SERENITY, all EU-funded projects working to advance palliative oncology care.

WP4: Delphi Process

WP4: Delphi Process

Through this Delphi study, the following aspects will be defined: 

  • characterisation of candidate patients for discussion about ATT deprescribing
  • healthcare team roles in ATT decision-making
  • specific information and communication requirements for patients when making deprescribing decisions
  • SDST content priorities; and optimal outcomes for the planned clinical trial.

Who am I to stop taking my medication?

Who am I to stop taking my medication?

Who am I to stop taking my medication – 𝘢 𝘱𝘢𝘵𝘪𝘦𝘯𝘵 𝘢𝘴𝘬𝘦𝘥 𝘪𝘯 𝘰𝘶𝘳 𝘳𝘦𝘤𝘦𝘯𝘵 𝘴𝘵𝘶𝘥𝘺.
When we as professionals want to stop medication, we often focus on the clinical reasoning: Risk of bleeding. Limited benefit. A burden.
All true — but not enough.

Patients need more than facts. They need support to engage in that decision. And some simply don’t feel it’s their place.

This is one of the key findings in our new qualitative study, part of the SERENITY consortium:
Some patients are willing and able to co-decide about stopping antithrombotics
Others defer to clinicians, feeling it’s not their role — especially near the end of life
The difference isn’t about education or attitude. It’s about context, trust, timing, framing.

Advance care planning isn’t just about what we do — but how we decide it. Together. Stopping medication starts with the patient.

New publication in British Journal of Haematology

New publication in British Journal of Haematology

Retrospective cohort study of adults in Wales diagnosed with poor prognosis cancer between 2013 and 2021, following up patients from cancer diagnosis until death, end of follow-up or study end (31 December 2021). Outcomes included ATT discontinuation, bleeding and thromboembolic events in secondary care.

Anti-thrombotic therapy in patients with cancer at the end of life: A cohort study using population-linked routinely collected data

 

New publication about Shared decision-making

New publication about Shared decision-making

This realist synthesis explores shared decision-making (SDM) to:

(a) provide insights into why prescribing continues in end-of-life care;

(b) build a conceptual platform for optimizing ATT prescribing for persons living with cancer towards end-of-life.

Conclusion
Implementation of ATT deprescribing is enabled or constrained by
(a) the meaning of medications to patients;
(b) clinician engagement and understanding;
(c) multi-disciplinary clinical decision-making processes (including support tools);
(d) patient empowerment;
(e) organizational investment.

Shared decision-making and deprescribing to support anti-thrombotic therapy (dis)continuance for persons living with cancer in their last phase of life: A realist synthesis